tackling Sturge-Weber Syndrome

Raise your awareness

Started in 2008 in West Springfield, Ma in honor of john Kenney, The Turkey Bowl has fast become a local tradition among many.  John Kenney is a 12  year old boy affected with Sturge-Weber Syndrome.  Sturge-Weber is a very rare disorder affecting the brain.  John has lesions on a portion of his brain prohibiting that area from growing.  john also has a large port wine stain on his face which is often common in Sturge-Weber cases.  John also has seizures several times a week.  Aside from the birthmark, you wouldn't know that John is different from his 7th grade peers.  With a rare disorder, it was hard to find any answers to what was affecting John.  When we found The Sturge-Weber foundation in 2005 we realized we were not alone in our struggle.  In 2008 John's family had a small gathering of friends at their home, a touch football game, and collected donations.  Now years later it has become a Thanksgiving tradition to many local families.  The Turkey Bowl has a touch football game, live music, crafts, and many childrens activities,  We suggest that adults donate $10 at the door and kids are always free.  All proceeds go directly to battle Sturge-Weber Syndrome.  The Sturge-Weber Foundation and Boston Childrens Hospital to fund research.  We hope you can join us this Thanksgiving and make a new family tradition!